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Caregiving today affects everyone. Either you are a caregiver, know someone who is, or you expect to be one. Caregivers, who come from every age, gender, race/ethnicity, and socioeconomic status, are typically individuals who provide unpaid care to a relative with a long-term physical condition who needs assistance with everyday activities of daily living. With the aging of the boomer population, many more family members and friends will be needed to provide care in America in coming years.
Health care and social service systems have not been adequately prepared for the demographic shift in older adults that will affect caregivers. Furthermore, today’s caregivers are often marginalized, left out of treatment decisions, and untrained for complicated tasks. Twenty-two percent of caregivers look after someone with Alzheimer’s and dementia, a number expected to grow with the aging baby boomer population, and 60% of them are women. Thirty-two percent are higher-hour caregivers or those who provide at least 21 hours each week of care to a loved one. In addition, a growing segment of the caregiving population are those age 75 or older who are typically caring for a close relative, are the sole provider of care, and usually live with the care recipient.
In the fall of 2017, policymakers participating in the Reforming States Group (RSG) meetings discussed what states can do to address these growing concerns. The session brought together nationally-recognized experts and state leaders to discuss the changing nature of family caregiving and efforts to provide supports for and enhance the capacity of unpaid family caregivers. Take a look at the presentations below:
Kathleen KellyExecutive DirectorNational Center on Caregiving
Lynn Friss FeinbergSenior Strategic Policy Advisor Independent Living/Long-Term CareAARP Public Policy Institute
Jennifer WolffProfessor, Department of Health Policy and ManagementJohns Hopkins Bloomberg School of Public Health
Rita B. ChoulaSenior AdvisorAARP Public Policy Institute
Richard H. FortinskyProfessor and Health Net, Inc.Endowed Chair in Geriatrics and GerontologyUConn Center on AgingUConn Health
Kari BensonExecutive Director, Minnesota Board on AgingDirector, Aging and Adult ServicesMinnesota Department of Human Services
Teeshla CurtisProgram ManagerSouth Carolina Department of Health and Human Services
Bea RectorActing Assistant SecretaryAging and Long Term Support AdministrationWashington State Department of Social and Health Services